Tuesday, April 19, 2011

Exploring the possibilities...

SOOOO, here's where we are now. Gage saw his beloved ENT surgeon today. As always, no symptoms today-I'm sure they'll return in a day or two though. Since there hasn't been any swelling/redness to note since the first of the year (which was prior to the 6 week treatment of antibiotics he was on) he's still not convinced that IT's coming back. It being the Staph (non MRSA)....

Again, we are watching and waiting, should something more present itself, such as skin changes or swelling we'll know that it may have in fact returned. However, our next step for now is to watch and wait. I may need to pull him off his ADHD meds to make sure they aren't causing the pain...Gage says the pain isn't a headache but again, he's only 10-so we have to make for sure...

After that, if he's not on his meds and he still has pain-we need to go to a Neurologist next who can help determine if he could have something else going on, like migraines...

But today is a good day, he has no pain and the doc and I agree that the last thing we want to do is surgery-took the child 3 months to heal from his last one (re-implant/device failure) ...

There's always the possibility that his Goldenhar (ear & jaw malformations) is aiding and abetting in his pain-which would mean he would need to learn to manage his pain in someway. We shall cross each bridge as we arrive and hope he has more pain free days than painful days!!!

One thing I am certain of-I don't at all think it's behavioral. He does this on the weekends also-not just at school...and the school actually wished he would complain more than he does. He'll make it all day in pain (never telling anyone) by simply taking each processor off and on to get thru the day (let each one take a turn resting)......so I don't for a second believe it's a behavioral thing.

We have audiology (mapping) on Thur to rule out any technical problems...and he also has an eye doc appt Tues...so we'll go from there!

IEPs are coming up-I have one on Friday and one the follow week (I think?) I live day to day and I rarely look beyond what I need to do in one single day, let alone the following week.

Also-if anyone is interested in writing for the online magazine Examiner.com like me-simply use this link to apply. They have a ton of available topics and you can also create your own if you'd like-be sure to use this link so they'll know I sent ya!   http://exm.nr/gN7aE6   I will concentrate on my writing more when school gets out. I rarely have time for it right now with two jobs and a family...but this summer, the two jobs will cease and I'll have some time.

I also bought my veggie garden plants today-I'm so excited to plant! I have 16 tomato plants, several banana peppers, cucumbers, squash, zucchini-and more to buy later when I see how much room I have left!!

And that's where we are.......

3 comments:

Lucas'Mommy said...

Still hoping & praying that IT's not coming back........ I might check out that link!!!

Anonymous said...

We just switch our sons ADHD medication because of headaches. He hated his old medication and begged me not to make him take it because it gives him a terrible headache afterward. This new medication is much better for him but sooner or later it could give him a headache too.

Prince Andrew and the Queen Mum said...

it is always a journey isn't it...