Once again...

So...
our patient has been doing extremely well since receiving his new ci on the 18th. He was activated this Tuesday only a week and a day post op, and he did fabulous and is beginning to make sense of all the 'robots' that are talking. He's gonna do great when we get his map just right and we hope that he'll start back school at some point next week.

We had a minor set back on Monday night after he went to bed. He came and got me out of bed and said, "Mama, check my surgery it's stinging here (in front of his ear where a scar had been revised during ci surgery) and see if it's bleeding"...
Well it wasn't bleeding, but I kind wish it had been! I won't get too graphic but due to the steroid injected during the revision to keep it from bulging again, it kinda just split back open without bleeding, (it had been cauterized during the surgery so I assume that's why it didn't bleed)...but I'll be honest, had there been blood, I wouldn't have seen EVERYTHING under the skin....(shudder)...
I hesitated on taking him to ER, we had an early morning appt. w/his surgeon anyway so we decided to steri strip it to kinda hold it together and keep it covered til we saw his surgeon...this is on his face so we wanted to be sure we did the right thing. Got to the surgeon early the next morning, he took one look at the gap which at this point was open at least half an inch (again, shudder) and he closed it back w/the steri strips to tell us he needed to be taken back to the O.R. to fix that!
We showed up the next morning (yesterday) and had it repaired and he also cleaned his other (the ci) incision as well. There was a spot on it that was getting kinda yucky so he did stitch that a little too so all in all, he was back there a good hour or hour and a half, but he is all fixed now. We do need to return on 11/11 to do a brief sedation and remove these stitches. There is no chance Gage would sit still and allow his nurse to remove these w/out causing further damage (his ADHD-even medicated-won't allow it) so we will have to go back and make sure everything is removed, no signs of infection or anything and he should be finished!
Poor guy can never just have it easy...but I can already tell you that today, it all looks great and much better than it did the last few days! We are on another round of antibiotics and I hope to send him back to school like Tues. or Thurs of next week. He has mapping on Wed. so we'll work towards that time frame, it just won't be Monday like I'd planned. AND the best news, he does not have Angioedema like my sister and Dad and other family members! That blood disorder I referred to in an earlier post.
And that's it so far!! He is still home w/me, doing school work from here. He will get to participate in all the Halloween activities on Saturday but I'll likely have to make him wear his head band like seen above to keep it covered. He's getting older so I may just paint something on his face and be done w/it. He wants blood tears to be kinda creepy so we may do that. So I guess he'll be some type of 'injured' person w/bloody tears. B is gonna be a witch, or a rabbit, or have her face painted as well. She is female, so her ideas can change quite rapidly. *smile*