Friday, April 3, 2009

just your average week at the Blakely's


So last weekend Gage's head started itching again, it became red again all the same areas and he was crying for unexplained reasons. By Tuesday, I had already talked to our doctor several times and we went into to let him have a look since he is the ci surgeon. He wasn't near as alarmed as he was last time since these symptoms were minor compared to what we dealt with last time. Last time he was in severe pain also, this time no pain (maybe because the ci had not been stimulated ?). Needless to say we are back on the antibiotics he was on for the staph infection(non MRSA) as precaution and the next step (should it come back) would be IV antibiotics again for 6-8 weeks. Hopefully we will be able to stay ahead of it this time should the "villain" try to come back and rob my son of his treasured implant he has yet to use. Our surgeon (who is still ranking high in Gage's book-no matter how many times Gage gets mad at him for digging in his ears or his head for that matter, he's practically family by now) has spent many hours researching, gaining every ounce of information he can so that he is armed with the right ammunition in this battle we face. We will conquer this once again, I have no doubt about that...one way or another. Furthermore, it's apparent that the ear that was sewn shut during this surgery is trying to open again. Soooo we may have to go back for a quick procedure to clean that, suction that, sew that back up if this is the case, and if so they can remove the skin tag from his face while he's sedated.

The good news is that since he's been on the meds this week, the redness has subsided and so has the itching and his behavior is back to his norm. We can't wait to see what happens next week at his stimulation. He has the newly re-implanted ear and the other ear that has been unaided for over four years. We will be posting video on that you can betcha!

On top of all that unfolding this week, I finally thought I would be able to sleep last night when.......Brooklyn was jumping on Gage's bed, I walked in the room and she jumped down, fell back and hit the back of her head. Had she turned her head a fraction to the side in either direction, I would have been bugging the ENT w/yet another Blakely tragedy. What is it with this family? Can we please catch a break? Actually we have I guess because Brook is fine, her knot disappeared, she hears fine and I'm hoping to cash in the rain check on all that good night's sleep I've been robbed of lately **smile** Oh what will next week bring?

And I close by saying these infections are very rare so don't start freaking out if your kid has cochlear implants, the chances of this happening is extremely rare. They are more likely to have it replaced from an accident like jumping on the bed or device failure than a rare infection like this (I would think, but always talk to your doctor or audiologist if you are concerned, that'll help you sleep at night!).

8 comments:

Anonymous said...

oh Val, I'm sitting here laughing- I guess since they are yours you don't find it funny.... but as an outsider its just a comical story! glad to hear that the meds are working for Gage- hopefully this will be the last infection you know of! and that Brook of yours... what a devil boy.... just gotta love those kiddos!
can't wait for activation!

Val said...

several of the mom's have already invested in Nice N Easy stock since our children are determined we go gray by age 40. I haven't figured out if my kids are trying to drive me nuts or their doctor???

Lucas'Mommy said...

I can't wait to read about activation next week... how exciting! I hope the antibiotics work!!!!

rouchi said...

I don't know how you manage your sense of humour and sanity after all these. I am at end of my energies with Prisha's little problems.Just running around to doctors trying to make sense of what they are saying can make you go crazy.Brave kids of a brave mom, Val.All good to all of you.

Bright Family said...

How frustrating! Glad you're able to keep your cool. Most would be much more upset! Gage is such a champ! It will be exciting to read and watch his activation. Best of luck!

Paula Rosenthal said...

Hope Gage's ear opening heals soon and glad to hear that Brook's fall wasn't more serious. Can't wait to see the activation video! All the best to you and your family.

elizabeth embracing life said...

That is sure a lot in one week. Everytime I hear a bump, I think this is going to be the time that metal thing pops out of his head, or the implant with disengaged or something like that. These kids are little studs if you ask me.

leah said...

Oh my goodness! I'm sitting here in California and I've missed all the drama at the Blakely house. Golly, it is time to catch up (kids are napping and we're on a beach break). I'm glad to hear that the antibiotics should help and that Brook didn't hit her head in the wrong place.