No time for anything other than a quick update. We are still in the hospital, I just ran home for a bit and will return to relieve Daddy from his duties as night guardsman first thing in the morning. We will be in there until around Tues if all goes well. He'll have a PIC line inserted into his arm and we'll do long term antibiotics at home. Upon checking in on Friday, our doc informed us that the other surgeons and Infecious Diseases all think that likely he may lose the implant at this point but it's worth a shot trying to save it w/the antibiotics. As of Sat night, his head still hurts pretty bad but everyone is optimistic that this is a localized infection and hope that these meds will work. Otherwise he could have surgery next week and our stay may be lengthened. So far, so good, he's not any worse which is a great sign. He had been having more severe pain daily up until this point. A much more detailed (and much deeper-you know me) post after I return. We're in good shape, he's not down sick, he just has an infection that hopefully will respond to these antibiotics. He is fully aware that he may lose his ci for a while (weeks or months) but more on that later. For now we are good!
And also an old high school friend came to visit us (prettiest red hair you've ever seen) and brought us an edible arrangements Spongebob fruit creation and I can't get Brook's hands off of it! She ate all the strawberries and almost all the grapes. Thank you "M". And Amy from Growing Fruit called me! How cool is that, I was star struck at first, I admit **grin** but she was just checking in on us. Thanks Amy.
14 comments:
I know exactly from first hand how this situation feels because ive been through it myself. Its harsh to have your hearing from your CI something youve treasured for a couple of years or more... to be taken away! Theres always the good news that you can have an implant in the other ear but you never know.. Fingers crossed that the ci surgeons can save the implant tho!
Get well soon! x
Glad to hear he is coping ok so far - sending lots of positive vibes your way that Gage continues to be the "unusual one" and instead gets to keep the implant!
Thanks for your comment on our blog. It's pretty definitive that he has CHARGE though. The primary diagnosis for CHARGE was the bilateral choanal atresia he was born with. Secondary was the hearing loss, then the low set ears, etc. I have CHARGE myself also.
I've enjoyed looking through your blogs! I hope your son recovers quickly from the infection with his CI.
Oh, Val. I'm praying that these antibiotics work and that they can save the CI. If they can't, then I'm praying that he heals quickly and can get a new one quickly! Thank goodness for childrens' hospitals and all they do to make hospital stays bearable for little ones.
Gage, get well SOON!
you crack me up. it was funny hearing you- i feel like i know some cyberfriends better than some skin friends sometimes! anyway- prayers all around and Andrew just prayed for Gage too. (Although I'm keeping details to a minimum...for him..and he's reading this while I type it..right Andrew...say Hi...HI! says Andrew...)
I am glad that he is okay so far.
Gage- Get Well Soon!!!
Before you know it will be all over.
Coming in late. Val, I knew Gage was having some problems, but I didn't realize it had worsened and now that he is hospitalized. I am so sorry to hear this.
I hope the antibiotics will do the trick.
Praying for Gage
elizabeth
I've been thinking of you and wondering how Gage was doing then decided to check your blog. I hope the antibiotics work. At least you now know that Gage can have his other ear implanted. Hopefully, he won't have to lose his CI for awhile, but, if he does and can get his other ear implanted shortly thereafter, the bright side is that he will get up to speed with it much faster since he will have no choice but to use only the new one for awhile. I really hope it doesn't come to that, though.
Oh Val ... hope this finds Gage feeling better and responding well to the antibiotics! I'm just getting back to my blogs after a few days off, and knew Gage was having issues, but not like this! Tell him I'll blast some good AC/DC for him! Get well soon Gage!
Oh Val ... hope this finds Gage feeling better and responding well to the antibiotics! I'm just getting back to my blogs after a few days off, and knew Gage was having issues, but not like this! Tell him I'll blast some good AC/DC for him! Get well soon Gage!
Keep thinking positive thoughts- they told us Trey would likely lose his implant as well, due to his mastoiditis, but with the IV antibiotics (and then additional via pic line), he got to keep it in. I'm thinking of ya'll. I too LOVE Children's hospitals. They usually do a great job of distracting and entertaining. Much better than Rob's hospital stay at the 'adult' hospital-LOL>
will update soon, still at the hosp on Tues. hopefully being released today. crossing fingers
Oh, Val- I hope he gets to come home today! Even though they do a good job at Childrens' hospitals, there's no place like home!
Tell my sweet Gage that sissy loves him. He looked like he had a little fun at the hospital on the Harley and sitting with Santa.
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