Friday, May 28, 2010

Pre-Memorial Day Updates


Peaches are growing.....so are apples...

as are grapes...
and flowers here in the country!
So that's what we'll be doing all summer, watching nature and our garden grow...
Brook has an ear infection...poor girl.
But the grand news here today is their report cards were fabulous. B got all S's and Gage's lowest grade was an 87 w/a yearly average in spelling of 100!

Cochlear sent me these bumper stickers for the Awareness Program and Gage put one on his 4 wheeler!
And they sent these magnetic thermometers that stick to our doors. I have one on the patio (where I practically live) and it said 84 this afternoon while the cool front porch said 76.
Gage doing donuts....rock on!

Thursday, May 27, 2010

It's Over....for now

Let the crazyiness begin, school is OVER!!

We said goodbye, although we will go back in the morning only to pick up report cards on our way to the pediatrician (Brook has an earache). I took the worse pictures inside that gym, sorry, I was crying, it was all I could do to hold the camera and my tissue all at once! I realized the teachers were asking the kindergartners what they wanted to be when they grew up, and I got a little nervous. I mean what would Brook say? I cried even harder thinking...she's gonna say "A MAMA" and I'll absolutely lose it then! She takes such good care of her babies and she tells me all the time that she wants to be like me! So her moment arrived...."Brooklyn Blakely, Most Outgoing"...smiling, she accepts her award and....here it comes...."And what do you want to be when you grow up?" the teacher asks. Oh here come the tears, she smiles directly at me, and I know right then I was right! She answers, "A singer!"...yep, my deaf child aspires to be a singer (so she says). And I laugh, because almost every girl after her said they wanted to be singers too. So cute. Well, she may take after mom after all. I am NO SINGER, but I sure can rap! Don't make me break out some Flo-rida, 2Pac, or Beastie Boys, lol!

Last minute announcements

A quick tidbit for you...you might want to remind teachers that you need a note sent home for any last minute announcements. At the very least they need to be 'announced' one on one w/the hearing impaired child. My kids both have turned in the FM equipment (this is their last day) and both missed the announcement to bring a dollar to school to watch a volleyball game. I happen to show up to bring Brook some extra shoes when her flip flop broke and was able to give them the dollar to go see the teachers be beaten defeated by the PTO (read that here, lol) So just a fyi, put a bug in the new teacher's ear that she/he will need to notify you by note or for older kids, they need to be directly told face to face any pop up announcements or they could be missing out!

Wednesday, May 26, 2010

My Blog Addictions...

Yes, I love blogging, but mainly story-telling! I wanted to list all my blogs here before school was released, several teachers read our blog and I wanted to be sure they have all of our blogs since I've branched out recently.

Cochlear Kids-my kids/my family, our personal experiences w/hearing loss

One Brick Shy...-all of my other crazy stories not related to hearing loss, mostly humor

Mud Boggers by Gage-his blog of his creations, look for many updates over the summer when he has more time to create

Bama Ears-hearing loss and family stories in AL, maintained along w/Tiffani from Sound Check Mama

Alabama PEEPs-Alabama's parent mentoring program for families w/children who have hearing loss; local events, hearing loss facts, etc.

Cicircle News-which I need to get back to! International stories about children w/heairng loss....

I'm All Ears-book blog, inactive unless we have a presentation somewhere

Tuesday, May 25, 2010

A Thank You

Don't forget to take a moment and write an end of the year thank you if you were really pleased with your child's school and teacher(s) or other school staff. Sometimes the only things that reach the Superintendents are the negatives. I took a moment and emailed our school's Superintendent about some of the staff I was really pleased with. I certainly want them to keep up the good work and sometimes all they need is a thank you or boost in confidence. We parents of special needs children have a lot on our plate, constantly. It is nice to have some teachers and school staff we can always rely on to be fair, honest, and teach our kids no matter what their challenges are. We say goodbye to 3rd grade this year, kindergarten too...but we are so ready for summer break! Yes, even ME! (3 more days)

Saturday, May 22, 2010

Fun at the Park

No she's not in jail....at least not yet!
We had a fun day at the park w/all the HEAR Center crew and families. The park was full of hearing impaired kiddos, many in hearing aids, others in cochlear implants, all adorable. Many veteran parents walked around introducing themselves to new faces...we have a lot of new families now, so glad so many could make it...but man it was HOT!!!

I did catch this precious perpetrator stealing ice from the coolers and I don't blame her, you could seriously fry eggs out there on the sidewalk!We had barbecue from Uncle Sam's BBQ catered in, cookies, hot dogs, chips...
And look at these precious bilateral brothers! Had a great time, look forward to seeing you all again hopefully soon.
And more pics to come later on the PEEPs blog, we had a professional photographer come down who happens to own the restaurant who catered our food. When she offered to take a few shots for our PEEPS site I put her to work! Can't wait to see those later...and several of those lovely Charity League Volunteers were there too! Thank You all, and we'll have more later on the other blog...I'm tired, I'm ready for a cool shower or a nice swim in the pool...

Wednesday, May 19, 2010

...and this is what I heard.

Earlier this week, while subbing for a class at school, I decided to have the children act out a script that was in their Reading books about Outer Space. I had about 7 kids up front, all lined up facing the other students, you know the ones that needed to be busy, who can't sit still, and about 9 kids remained in their seats as audience members. I took a seat in the rear of the classroom. Now, the room was very quiet, they were actually paying attention to this play. When I sat down, this room of tiled flooring, white boards on the walls with tennis balls on the bottoms of the chairs...wasn't as quiet as I had thought while I stood in front of the class. Granted I was in the back, catching all distractions forward, but I could barely hear the students with the softer, higher pitched voices, and I have normal hearing! About the time 'crew member 1' began speaking, all I heard was, "swishhh, swishhhh, swishhhh." I look over and a kid was sharpening his pencil with a hand held sharpener. After I was certain the thing was sharp enough, I snapped my fingers to get his attention and motioned for him to put it away....we weren't using pencils anyway. Another kid was getting antsy and shuffled his feet (constantly) and yet another with allergies was sniffling the whole time (nothing we could do about that). But my point is, the room sounds a lot different sitting down, in with students than it does standing up. It may be something good for the teachers/principals to try...going in and sitting down, it won't take 5 min. to discover all the distracting noises...always make sure your kids are in the best seat possible in regards to their hearing loss, ask an audiologist or Teacher of the Deaf where your child needs to sit in his/her classroom to maximize hearing. I'm also thankful we have an FM system which I'm sure helps a great deal also. I had turned Gage's off though during the play (I was in his classroom at the time) because I wasn't the one teaching, it was all the other students and I didn't want them handling or passing the mic randomly around each time one character spoke, we had the read-along so he could keep up with that.

Tuesday, May 18, 2010

Miscellaneous News

Be sure when your daughter asks you a question, like, "What is this?" You see what they are wearing when they ask...B was all ready to go swimming but I'm covered up in phone calls, emails, etc. trying to get posted about the ENT visit today so I quickly said, "Oh that's shower gel," when she brought me a sample size bottle found who knows where! Little did I know, she was wearing her swim suit and I just followed her out, sat on the patio while she swam, and I realized, I didn't see he put that down.

YEP!!!! I had to hose the gal off and explain, shower gel mean shower not pool! lol
Frogs gross me out by the way, and she catches them every single night!


On to other news. Took Gage to audiology for mapping today. We are currently at 8 electrodes turned off, but a few look like they may or may not be able to be turned back on....? This mystery ear (his right ear holding it's first ever ci) is confusing us...we should hear back from Cochlear tomorrow on possible news of integrity testing....what the engineers think is going on...etc. We may possibly need to double map some of his electrodes so they can pull double duty and get him more information. Will continue to update as I can. Also one of his tiny scars seems to be swelling....kinda puffed out but no pain...so we were asked to swing by the ENT while we were in the big city to see what he thought. It is a keloid scar. So it is fine! No infection, no pain, just a little puffy which we can have removed later at any point...we are good for now!

Now one more thing I hope to blog is what I observed on classroom noise as a sub teacher. Maybe tomorrow if I get a chance. Must go out and supervise the garden tilling!

Monday, May 17, 2010

Something's Wrong With This Picture...


"Gage, can I listen to your i-pot?"........Well, you might can hear it (and it's an ipod by the way) if you put it up to your electronic ears instead....

Okay, busy at the Blakely's house.....last minute subbing jobs opening up (which I gladly take) and we have mapping in the morning for Gage...we have our pool up now so we rush home to swim after school...

busy busy busy...but soon we'll be bored I'm sure, 9 more days of sanity and the kids get out for summer break!!!!

Sunday, May 16, 2010

Spring Fling at School

We had field day at school but I was needed as a sub rather than a parent spectator this year. Appropriately called Spring Fling, this is the day when kids 'compete' but nothing is recorded, no winners announced, just for fun kinda day...full of sack races, tug of war, and yes a mud battle, even water events (which my kids didn't do all of these events at my request) Since I was not there w/my kids to hold processors and re-tape them on, I decided to ask them to watch the events in which running water was applied to heads (in one they each had small containers held on top of their heads and passed water down the line from bucket to bucket to see which line could collect the most at the end of each within 2 minutes...most of the water was dumped on their heads rather than each container but they all had fun). If the students didn't bring a change of clothes they had to sit these out also, and some just chose to sit out, so my kids were not alone *smile*. When my class returned from the half day of events, they were exhausted and many fell asleep as we all settled in for a long read from a new book (I read 4 chapters and all but like 2 fell asleep!! Though my eyes were open, my brain fell asleep too! exhausted!) Had an awesome week but such a busy one last week...only have one actual appt this week, Gage's much needed mapping. The rest is wide open, so call me up teachers, I'll be glad to work a couple of days!! Only 2 more weeks of school!

Thursday, May 13, 2010

Kindergarten Field Trip

Transportation was the key word for today's field trip!
We sat in a helicopter...

an airplane...

We took a break and had a picnic at a park...WITH A METAL SLIDE for all you cochlear implant folks, you know I was pleased! But the park also had lots of plastic slides so Brooklyn ripped off her processors, gave them to me, she played and reattached them (without new tape) so they weren't as secure as I would have liked for the next stop...

the docks(I could just see processors falling in the water)...we saw boats and a helicopter landed for the finale!
YAY, and field day is tomorrow!!

Wednesday, May 12, 2010

They don't get....




Thanks to early detection and early intervention, many of our special needs children are going to school everyday with almost invisible disabilities. Deaf kids talk, blind children use the computers, kids with autism can sit (and tolerate) much of the classroom activities...
So when a child with these almost invisible disabilities misbehaves, how is it handled? Here in Alabama, in most schools it is legal to paddle children. I found out the hard way when my son thumped food in the lunchroom a couple of years ago and got paddled for it along with another child. Right then I knew I wanted to protect my children...

At school, we push for our special needs children to be treated no different (with respect to their individual disability or disabilities), but then occasionally when they are treated no different, we get upset, mad, pull out that invisible "special needs card" we carry in our hearts and flash it before their eyes. We want them to briefly see what we see. They don't get the child who comes home everyday, putting stickers behind her dolls' ears because they are all deaf like her and wear hearing aids. They don't get the child who knocks 'goodnight' on the bedroom wall because brother can feel it, but not hear it. They don't get the child that needs you to flip the lights on/off in order to say 'hurry up and get out of the shower!' because they can't hear your urgent voice. They don't get the child who worries how she's gonna hear her unborn babies cry at night....they don't get that. They get the child who walks thru the door, smiles and says good morning, who makes 100's on all her spelling tests, who can raise her hand and ask "May I go to the restroom?"...your average child...who happens to have an IEP that states they are special needs.

I feel like some things kinda build up, like a kid not listening, not following directions, etc. and then when the teacher's had enough, it could warrant a paddling. However, the unseen for us, is the not listening, not following directions, 'disruptive' behavior when they are divided in groups, all could be hearing loss, not behavior. I want to ask all the right questions prior to my child getting popped like, "Did you ask him/her to repeat the instructions so you know he/she actually heard them? Is your mic working, did you do a listening check like we showed you?" or even when a class is divided into small groups so the teacher can do reading at the varying levels of her class, "Did you turn your mic off before you sent him away from your group so he can actually follow the other group activity w/out your voice reading a different story to a different group directly in his ear?"

I took appropriate precautions and added this to his future IEPs (Individualized Education Plan). My severe mistake, was not double checking to make sure I had added it to my daughter's also. Once again, I have a child paddled, without prior phone call, who is special needs. The short note stated she had touched 2 girls while she waited to use the restroom and blew paper at the lunch table and she got in trouble in small groups. Well, obviously the lunchroom paper does not warrant a paddling so I swipe that right off the list. Small groups; I need more detail...what exactly happened, did you have the mic on...give me more!  Restroom, she swears she didn't touch those girls' hands as she was accused of (??) ... and also Brook states that she didn't even see the principal (don't we go to the principal first?). She hasn't been sent to the Principal's office (to my knowledge) since the beginning of the school year. She had not even received a check mark for conduct in a couple of weeks! She's no angel, I'm fully aware, we have worked really hard and even the principal had bragged to me (a while back) how proud she was of B's improvement! My fatal error is not having had this preferred punishment process listed in her IEP! I find out when I get home last night after meeting w/Children's Hosp. all day on this PEEPs advocacy training!! No phone call. I'm disappointed. But my intention in putting this up is for all you who are in the process of IEP meetings to BE SURE you find out what your school's policy is on punishment and decide what is suitable for your family. Our special children can seem average in most every way, but they come with papers...

...papers that you sign. I'm sad, Brook's sad, I have to straighten it out, amending the new IEP for next year has already been set up. I will not receive the Mom of the Year Award because I got too comfortable, I didn't double check myself, and all I wanted was a phone call. I intend on speaking in more detail to her teacher tomorrow, asking the questions I wanted to ask PRIOR  to a paddling.

Monday, May 10, 2010

Quick Updates May 10

  • Happy Birthday Gage, he's 9 !!!!
  • I have PEEPs training day tomorrow-can't wait to talk to the Hearing Impaired Teacher, UAB Genetics, AVT (auditory-verbal therapist), AuD, EI (Early Intervention), and many more who have agreed to come in and teach the mentors MORE about hearing loss
  • Brook has completed her flower bed



  • I don't think Gage can hear well at all but he has mapping next week, not sure if it is right ear related (the ear w/7 electrodes turned off)??
  • Brook wants to have a house right next door to me when she grows up so I can help her watch ALL of her kids...I hope she brings the # of kids down a bit, not convinced 23 kids will fit into MY patience schedule but we'll manage
  • Brook has a field trip on Thurs. and I get to attend!

Sunday, May 9, 2010

Priceless

Here's one of my all time favorite gifts, Brook answered these questions and her answers are so priceless! She also filled one out already for Father's Day since they won't be in school during that holiday. I think you can click each photo to view it larger.

A girl who will not trade her mom for chocolate means true love!!!
A hearing impaired child who will not trade her dad for talking, again, true love!
And she made Gage a birthday card!

Saturday, May 8, 2010

Overnights

My oldest 'baby' will be 9 on Monday!! I can't believe it. We let him invite a few buds over for an overnighter on Thurs. since our school was out on Fri. He took us up on that offer and I'm so glad we did that! He (and the others) had a ball. Brook...not so much, she was starving for her brother's attention-which I hope he gives her today when they wake-and did aggravate the boys as much as she possibly could...oh well.
My thing about overnights...as I've already explained to some of the other mothers...........

I had rather be the house that kids gravitate towards. I know I'll watch them and I'm not doubting the other mothers' supervision, it's just that I'd rather get all the kids used to 'living w/hearing loss' under my supervision and let them have a front row seat to things like...

we have to flip lights on and off when they are w/out processors to get their attention and this includes while in the shower...
sometimes environmental noises outside make it hard for them to hear at great distances...
I want them all to practice communicating w/my kids at these times, I wanted to model for them how we do things rather than just have them throw in the towel and give up when they are unclear how to get a message across. So I made a point to say things like, "remember, we don't lock the bedroom door at night because when we go to sleep, we need access to this room should there be a fire or emergency...Gage wouldn't wake if we just knocked."
All the kids seem to 'get it' and one day I will let go and trust him/them enough to let him go on an overnighter w/classmates. Right now, I have them all in training, they just don't know it!

Wednesday, May 5, 2010

Knockin' on Wood

The only difference between my kids banging on the wall when they wake up or when they go to bed and all the hearing kids who do the same thing is...it's their ONLY way of communication through this wall. With their hands placed flat they await each other's 'reply' and with sweet little giggles, they knock back to say good night or 'time to wake up and play with me'.

You won't hear, "Good night John Boy, Good night Mary Ellen, Good night Grandpa," here at my house, but you might hear a little knock on the walls.

Monday, May 3, 2010

Music

We gave him his EARLY birthday present yesterday (can't believe he'll be 9) which was an ipod shuffle. Is this how any other ci people are doing it? He didn't like telecoil, he said it was too quiet (Brook hates telecoil !) so he's just using it w/earbuds near his mics and he loves it!


 He loves that he can walk around and listen to music like his older cousins do! He even let Brook try it out (for like a minute) and now she wants one too! If they plug directly into their ci via an audio cord their processors came with, they can't operate the shuffle since the buttons are on the earbud cord.
and here are the little devils sweethearts practicing a very good listening exercise...I heard Gage say, "listen Brook, it's the A word!! Listen, here it comes," while playing some AC/DC on his cd player. We are so proud!

Saturday, May 1, 2010

Incidentals from Dora...



Age six, in Kindergarten, public school, hearing deaf child, she makes it look easy! Nothing is impossible! Go girl, go!

translation...
1 Uno 
2 Dos
3 Tres
4 Cuatro
5 Cinco
6 Seis
7 Siete
8 Ocho
9 Nueve
10 Diez
11 Once
12 Doce
13 Trece  
she says catorco and mom corrects with
14 Catorce
15 Quince
that's all I can do....mom says, "okay good! now can you count by 2's?"
"2,4,6,8,10,11, uh, 10,12" mom says, "that's good" and she then says, "14"
Mom says, "very good" and she says, "that's all I can do, and I know how to do twos to a hundred"

she just picked this up from watching Dora